I've been in the hospital 4 times in the last 2 weeks and one time was for brain surgery that didn't answer any of the questions we were hoping to answer. I'm starting to feel very defeated and kind of doomed that this is going to be a life long kind of thing and fated to end up blind as well. If you knew half the crap thats gone on in the last month, you would absolutely cry but my heart keeps beating and I smile at least once a day to make sure that my face remembers how.
Then after it all, my doctor doesn't know what to do after 2 years of doing everything and anything, nothings improved. Kind of sucks when your doctor throws his hands up in utter defeat and says he feels he will be wasting your time to continue being your doctor cuz he hasn't a clue what to do to help and hopes maybe another doctor with a fresh perspective could help if at the least, be able to hook me up with a specialist who can actually help for sure.
UGH... didn't mean to write a book but this is my life and I'm living each day as if it was my last and holding my head up high hoping I won't pass out and keeping it real without thought!
Love ya,
Kara
